One in ten individuals are living with a rare disease.   On the last day of February every year, hundreds of patient organizations from more than 80 countries conduct awareness-raising activities to celebrate Rare Disease Day. In honor of the 10th annual Rare Disease Day, Lumos Pharma has created the below video “Screen Creatine NOW!” in…

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The Lumos Team supports CCDS Awareness Day. Thank you Association for Creatine Deficiencies – ACD – for organizing this day!  

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Austin, Texas – June 21, 2016 – Lumos Pharma, Inc. has further expanded its management team with the appointment of Carol A. Dutch as Senior Director, Patient Engagement. Ms. Dutch will create and lead global patient engagement projects to support the clinical development and pre-commercial phases of Lumos’ rare and orphan disease pipeline projects. Over…

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Austin, Texas – April 28, 2016 – ACD Exhibit Booth at ACMG The 2016 American College of Medical Genetics (ACMG) Conference was held in Tampa, Florida March 9-11. The ACD attended with an exhibit booth to help raise awareness of CCDS. The conference was well attended by geneticists from all over the world as well…

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Austin, Texas – April 20, 2016 – Lumos Pharma, Inc. a clinical stage biotechnology company focused on bringing novel therapies to patients with unmet medical needs in severe, rare, and genetic diseases, announced that John C. McKew, Ph.D. has joined the company as its Chief Scientific Officer. “John is one of the most well-known and…

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