WELCOME TO LUMOS PHARMA ADVOCACY
Rare disease advocacy at Lumos Pharma is a junction where our company can connect with patients and organizations that intersect with our science and research. It is a place where both sides can learn and share from our respective journeys: from the challenges of being diagnosed and living with a rare disease to the challenges of developing therapies for such diseases.
We want to understand and learn from our rare disease patients’ journeys, their experiences, and their unique needs.
Rare disease patients and their caretakers inspire us to learn as much as we can, to persevere and continue to advance the development of potential therapies to treat rare diseases. We are grateful and honored to work on collaborative projects such as increasing disease awareness, enabling better diagnostic modalities and access, and providing education and services to support patient and healthcare communities.
