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Lumos joins Association for Creatine Deficiencies in Kyle for Local Rare Disease Day Event

AUSTIN, Texas – February 16, 2016 – In recognition of Rare Disease Day, members of the Lumos team will attending the local Rare Disease Day event, Cup of Hope, a chili cook-off, sponsored by U.R. Our Hope, in Kyle, Texas on Saturday, February 20th.   Also in attendance and hosting a booth, will be Whitnie Strauss, Vice President of Association for Creatine Deficiencies, CTD parent and advocate extraordinaire.


Details are in the flyer below. We hope to see you there!!