Lumos joins Association for Creatine Deficiencies in Kyle for Local Rare Disease Day Event
AUSTIN, Texas – February 16, 2016 – In recognition of Rare Disease Day, members of the Lumos team will attending the local Rare Disease Day event, Cup of Hope, a chili cook-off, sponsored by U.R. Our Hope, in Kyle, Texas on Saturday, February 20th. Also in attendance and hosting a booth, will be Whitnie Strauss, Vice President of Association for Creatine Deficiencies, CTD parent and advocate extraordinaire.
Details are in the flyer below. We hope to see you there!!