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We would love to hear from you

Whether you are an individual or a family facing the challenges of a rare disease with an unmet need, a healthcare professional caring for rare disease patients or you are interested in getting involved with our development, please reach out to us. We would love to hear from you.




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Austin Headquarters

4200 Marathon Blvd., Suite 200
Austin, Texas 78756
(512) 215-2630



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Ames Office

2503 South Loop Drive
Ames, IA 50010
(515) 296-5555



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