Austin, Texas – March 15, 2017 ScreenCreatine Project: Disease awareness website launched to expand understanding and resources associated with Cerebral Creatine Deficiency Syndromes (CCDS) including Creatine Transporter Deficiency (CTD) Today, Lumos Pharma launches the disease awareness website ScreenCreatine.org, part of the ScreenCreatine Project.  ScreenCreatine.org was developed to provide health literate information about the three creatine […]

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One in ten individuals are living with a rare disease.   On the last day of February every year, hundreds of patient organizations from more than 80 countries conduct awareness-raising activities to celebrate Rare Disease Day. In honor of the 10th annual Rare Disease Day, Lumos Pharma has created the below video “Screen Creatine NOW!” in […]

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The Lumos Team supports CCDS Awareness Day. Thank you Association for Creatine Deficiencies – ACD – for organizing this day!  

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Austin, Texas – June 21, 2016 – Lumos Pharma, Inc. has further expanded its management team with the appointment of Carol A. Dutch as Senior Director, Patient Engagement. Ms. Dutch will create and lead global patient engagement projects to support the clinical development and pre-commercial phases of Lumos’ rare and orphan disease pipeline projects. Over […]

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Austin, Texas – April 28, 2016 – ACD Exhibit Booth at ACMG The 2016 American College of Medical Genetics (ACMG) Conference was held in Tampa, Florida March 9-11. The ACD attended with an exhibit booth to help raise awareness of CCDS. The conference was well attended by geneticists from all over the world as well […]

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